Description
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.
Author: Debbie Frisk, Chelsea McCutchin
Publisher: Rtc Publishing
Published: 09/08/2014
Pages: 82
Binding Type: Paperback
Weight: 0.32lbs
Size: 9.61h x 6.69w x 0.17d
ISBN13: 9781939418708
ISBN10: 1939418704
BISAC Categories:
- Family & Relationships | Children with Special Needs
- Education | Special Education | Developmental & Intellectual Disabilitie
- Education | Special Education | Physical Disabilities
This title is not returnable